Showing posts with label wheelchairs in the city. Show all posts

Top 4 Wheelchair Annoyances

1. Seat belts
They are a great thing and I always have mine on unless I'm in a parked position. After too many accidents of falling out, or nearly falling out I have become a paranoid constant seat belt wearer. (The fact that I am always zooming off somewhere means that my seat belt wearing has literally been a life saver.) This also means that I am always looking for where it is! It drops between the wheels and the seat. It becomes tangled in the spokes. It drops in the crevice behind the seat. Somehow it has become wrapped around the metal handlebars. And my hand is always reaching for it in all of the weird spaces, jammed in somewhere that I'm pretty sure the manufacturers never intended for me to cram my fingers into.

2. Jammed fingers
When not in school or at work I use a manual wheelchair. It's easier to get around in places that might not be accessible, and also it collapses easily in friends' cars. Manual wheelchairs are great! And I particularly like when I switch from my power wheelchair to my manual because I feel more.. human in it. I feel less like a robot or a transformer. With that said though there is one gripe I have about a manual chair: because it is something that I push myself in, I frequently have jammed my fingers into the brakes. Usually this is because I haven't fully released the locks yet, or because I'm just not (as usual) paying attention to what I'm doing with myself. But ramming my thumb into the brake mechanism is probably one of my most frequent injuries in a manual wheelchair.

3. When it rains it soaks
People who are not wheelchair users just get their outer-wear wet. They can take off their jackets, their hats, their shoes etc and feel dry within minutes. Wheelchair users however have the joy of sitting in wet cushions, or against the back of the seat as raindrops casually drip down it. Let's not forget the armrests that collect puddles of water, the little pool that is only waiting for my elbow to carelessly rest into. Most of the time I have been lucky to find a bathroom that has automatic hand dryers that I just chill underneath the nozzle for a bit... otherwise it leaves for a very very long day.

4. It's not their arm rest, elbow rest, bag carrier, good-deed-of-the-day etc.
Unless otherwise requested or given permission, none of those things applies to anyone else except for the one in the seat. It has gotten to the point where I have no qualms about moving forward when I know someone is leaning on my chair (and the person didn't ask beforehand.) The other piece of this is that unless requested - do not rush (and assume) the person in the chair needs your help. There are reasons for why wheelchair users are super protective of their mobility devices. Would you want someone rushing to touch your legs and untangle them for you every time you tripped? Probably not. That's a little weird to have random hands all over your limbs. It's the same boundary concept; the faster non-wheelchair users get that line drawn in their minds the less tempting it will be for us to flatten toes at will.


Got others? Leave them in the comments section! 

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All Aboard! Public Transportation

Users of public transportation know what a pain it is to get on that bus or subway car during rush hour. So when you take-up space for at least two people, can't get to the allotted 'Wheelchair Seating Area' because of the miles of bags and jackets in between, and you're trying to avoid the glares from accidentally nipping his & hers fancy work shoes with your four wheels -- I am going to argue that it's an above average pain.

If there is one thing that I strongly dislike about being in a wheelchair, it's that I can't stand being a logistical hassle. As a personal preference (that has nothing to do with being disabled) I like when things are efficient and user-friendly... so before I start sounding like an ad for the latest Apple product, let's just say that commuting on public transportation and other daily-life accommodations are usually less than hassle-free.
It makes my stomach turn. I am fervently hoping that I will magically evaporate into thin air. And I pretty much just avoid all eye-contact while listening intently for someone to say "could you move out of the way?!"
But I am beginning to do it enough that the city-life attitude has been rubbing on to me. That air of 'get-out-of-my-way-I-have-places-to-be-and-things-to-do-ten-minutes-ago,' and when people strut off the subway platforms and plow through to the exit doors - I have gotten good at zooming in and out of open pockets of space in the crowds. Eyes straight ahead, ear buds in, hand on the joystick and I will dare anyone in their best business suit to even try to cut me off. Save yourself the crushed toes and just don't.

Here's the thing though, there really is no reason anyone should feel embarrassed, guilty, or like it's a hassle because you're holding up the subway car so the conductor can figure out how to deploy the lift. Glare straight back at the impatient passengers who are pleading with their eyes "oh my god, seriously, why am I stuck on the train with the wheelchair person taking forever?!" Because the fact remains that you are not taking forever. The conductor who should know his or her job is taking forever to figure out how to get the lift working.
Also it's public transportation! Just because we are genetic mutants or minorities, or have been given medical labels like "rare disease" - doesn't make our position in the public any less valid. There is no membership card needed to be a part of the public. You exist and you live in that community, you are the public. Our four wheels is just as deserving of that commuter rail ride as the person on two legs. The time it takes for us to roll on to the platform and watch the massive wave of feet shuffle over, should be just as expected as when someone rushes through the closing doors to squeeze onto that bloated train.

One morning I waited on the platform, dressed for work and prepared for a presentation I had to give at one of those meetings with donuts & coffee on the back table. The train pulled into the station, the crowd got on and I wasn't aggressive enough - and realized dishearteningly that it'd be better for me to wait for the next train. (I had a presentation to give, I didn't want to risk a broken nose because the morning commuters had elbowed me in the face).

"Hey are you getting on? There's space." A guy called to me from the still opened doors. There wasn't actually space, but he was gesturing for people to squish into the center of the train.
I eye-balled the area that was steadily getting larger with every step inwards from casual-dress shoes and high heels. The doors would be closed any second and I had to make a decision. Would I get on? Would I wait for the next train?
"C'mon, c'mon, we've made space. We can all get to work on time!" 

I took a deep breath in and thought here we go, let's do this! 

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Urban Rolling: The Ground Never Looked So Interestingly Dangerous

Boston, where I grew up, is one of the oldest cities in the country. The city's historical cobble stoned sidewalks combined with its College Town reputation makes for an interesting dynamic. Beantown's subway system (metro) is the oldest in the country, but even without it you could easily stroll from one end of the city to the other. Each of the different neighborhoods of Boston has its own flavoring, own historical distinctions, and most prevalent are its own college students. It seems that wherever you are in town you're never far from stepping onto a college campus!


Actual sign at a Boston station!
As a wheelchair user in my home city I know how long to hold my breath as the elevator to the Park Street station opens to avoid breathing in a urine drenched stench. I also know which bus lines will allow me to ride for free, and most importantly how to get to Fenway Park when the 'normal' station everyone else uses (Kenmore) is non-accessible. I have an internal clock that lets me know how many seconds I have in order to look for where the train is leveled with the platform before doors slide shut. And when the elevator buttons have the letters M, UP, and P on them - I know that those stand for Mezzanine Level, Under Pass, and Platform respectively. It certainly took me several years to get the hang of it and sometimes I still get a little confused as to where elevators are, but public transportation is definitely my preferred method of getting around town. I don't want to spend too long talking about public transportation systems since my readers hail from all over the country (and world!) so the various train systems will differ widely, but I will encourage you to at least try it out! 

The patchwork of different textured cement, brick, stone, and pavement is something that I find weirdly fascinating; especially in a city like Boston where renovations and construction projects are never-ending as it tries its hardest to hold firm to historical roots. One second I will find myself cruising smoothly along freshly laid granite when suddenly my wheels will hit cobble stones, and I'll feel like a bobble head doll! This might just be me but on routes that I have traveled many times I have memorized not just mentally but physically what to expect. Depending on the material the sidewalk is made out of my body automatically positions itself in preparation. If it's brick I straighten my back a bit more and tighten my stomach; if it's cobble stone I am barely breathing and only trying to not go too fast; and if it's pavement that's been all cracked up I am much more relaxed and going over the crevices slowly but steadily.
Maybe it's because I grew up in Boston or because I have had so much experience wheeling through cities but so much of my travel instincts come naturally to me. I innately know that although that sidewalk crack may not look big, it actually will send quite the thud through my entire wheelchair and body as I cross it. And what about that brick path that goes on for about five feet? I know that I need to be careful of their corners and edges that jut out awkwardly from the surface. I also know that when curb cuts aren't around in a residential area I quickly borrow someone's driveway to cross to the other side. My eyes have become superb at guesstimating the height of a bump, will my wheelchair be able to handle that? Will I need to stiffen my body in anticipation of the thud as the chair returns to even ground? Scanning the sidewalk for a small enough place to drop down or climb over has become second nature, I guess it's kinda like when an experienced tailor eyes a suit. 

Taking caution while traveling in the city is especially necessary if I am wheeling about with a fracture. Even the most natural looking sidewalk crack that doesn't have a single blade of grass growing between it can send reverberations through a broken limb that will have me slow my wheelchair down to a crawl; I have been known to hold my breath as I tap the joystick of my wheelchair ever so slightly to nudge my wheels over a bump. I remember when I was younger if I had a broken leg my parents would put me in the stroller but I would plead with them to take their time going down the sidewalk. They would usually respond with something like, "Doesn't the cast hold it still? Why does your leg still hurt? There are no big bumps on this sidewalk, you will be fine." But they never understood why the neatly squared and separated pieces of sidewalk would make the fractured area feel so sore. 
A couple times when I have NOT been as careful as I should have been I have hit bumps or hopped off curbs that were a little too high; with a sharp breath I'll breathe in and for a split second I wonder if I have broken any ribs, my back or maybe my tailbone. Fractures that happened like this have only ever happened a handful of times but each time I am logging it into my mind: What landmark is the bump nearby? What street is it on? Where should I have steered instead? All of this ends up adding some more topographical detailing to my mental maps, for the maps of my wheels. 

A favorite place for a stroll
I realize that all of this might seem like I am staring at the ground a lot when I am traveling. But I promise I'm not. I don't travel with a magnifying glass as I roll through the city, like some old fashioned sleuth - I'm not that awkward. Growing up on the East coast means that I am also an old hand when it comes to traveling in eight or more inches of unforgiving snow, ice, and slush. THAT stuff makes it impossible to know what lies beneath their crude snowy surfaces, so really I can't always be looking on the ground - it doesn't always do me any good. (By the way, traveling in snow & winter will be for a completely separate future post. But it's the middle of July and I don't want to be depressed just yet...) If you were to ever see me cruising around the city it's kind of a mix of looking ahead, around, above, and below. Simply put it all of this forces me to be more aware; I've learned that there are far more than just roses waiting to be smelled along the way. 

Rolling with it in the City:
  • As with anyone else, the longer you live in a place the better you'll know it. Finding the best routes for your chair to go will take experience and time - allow both of those to grow! 
  • Go with your gut feeling. If you think that you probably shouldn't try to fly over that curb cut or over the pot hole... DON'T! Try to see if there is a way around it - this might even take some back tracking and finding an exit that you may have already gone by
  • Wheelchair routes may not always be visibly obvious. Don't hesitate to ask someone which path would be best for your chair to travel
  • If you're adventurous and willing, try exploring your city's public transportation options for the day. Many cities have discounted fares for the disabled and other companion benefits
  • If possible, I would recommend traveling in an area when it is daylight out before you go through it at night for the first time (for safety and visibility purposes)
  • When crossing the street, make sure you are comfortable with the curb cut at the crosswalk (that you have found a place that is not too high) before crossing. It won't be the end of the world if you need to wait for the walk signal to tick off again while you find a safe place. The worse nightmare would be if you were awkwardly stuck on a curb cut as cars are whizzing by! (Yes, I am speaking from experience). 

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