Showing posts with label orthopedic surgeries. Show all posts

Listening to say Good Bye

"Are you here all by yourself?" Her kind smile let me know that she was somebody's grandmother. Her tired eyes told me she was some young patient's grandmother.

I nodded yes, and gestured at the empty seat at the round table I was at, letting her know she could sit there. My attention turned back to whatever it was I was doing on my laptop, something that wasn't really busy enough. She plugged in her cellphone in the outlet on the colorful blue pillar near us. I figured she was just waiting for her grandchild's appointment to be over, maybe she was waiting for the Valet to bring the car around, her phone made trilling alerts. I continued tapping away, letting the familiar noises and framed Dr. Seuss pictures fade to the background in my mind. The old woman became a part of that background in my mind too.

"My granddaughter just got out of surgery. She had surgery on her back, I just came down to sit for awhile. To get away from her room, it's just so hard to see her in so much pain." I looked up from my screen as she spoke. Her elbows rested on her knees as a maroon cellphone, the kind of model where a keyboard slides out, shook in her hands. I closed the lid of my laptop and listened.
"I'm sorry to hear that. But I can understand it can be exhausting sometimes, all of this. It's good for you to take a break every now and again." She set her cellphone down on the table as she slid fingers in the space between bifocals and her eyes, she rubbed them like she was trying to see past an illusion.
"My son is in there with her right now. And he keeps sending me these texts letting me know how she is doing, the pain that she is in. No one calls anymore, everyone just texts and I hate texting." She smiled at me, knowingly because she knows that I probably hate talking on the phone and prefer texting. But I listened because it seemed that is what her she needed most.

"My granddaughter she is 17 but, mentally she is really probably about 14 or so. She had surgery on her back because she has ..sholi..sholio..something? Her back has a terrible curve in it. I am not even sure how it's pronounced."
"Oh scoliosis?" I respond. She nodded eagerly, and I took that as an opening. An opening that maybe I could venture in, although in truth I had no idea what I was getting myself into. Or, more importantly - what she was following me into.
"I have a brittle bones condition, so my bones break easily. I was basically born with scoliosis. I'm a little familiar with the back surgery because some of my friends have had it, they put a lot of hardware in there. My friends all seem to be happy with their operation."
"Oh bless your heart. I know this was probably the right decision for her but it's still hard to see her in all of that pain." I could only nod. Au Bon Pain smelled like it was baking another batch of buttery croissants behind us. A child screamed for a balloon. I saw the tip of a red shoe from the hospital clown from the corner of my eye. Her tired sighs, interrupted by the trilling noise of text message alerts, were loudest to me.

"Have you been going to Children's Hospital for a long time?" She asked me.
"Yes, I was diagnosed here. Although today was my last appointment with my pediatrician, I'll be headed to a less colorful and fun doctor's office next time." I said, trying earnestly to kid.
"Oh my! That's quite some time! My granddaughter, this is the second time she has been here. She was originally at the Children's Hospital in Florida."
"Well, you know they do say that Boston is the best place to be for children's medical care." My loyalty to the hospital, despite all of its changing construction and branding, was something I was proud about. A pride that I wanted her to find some comfort in.
"I know, I know. And I am sure the surgeon did a fine job on her. He really seemed to know his stuff, he seemed like he knew what he was doing."

Conscious of all the reassurances she had probably already been receiving, whether it was the ICU Nurse, the attending, the surgeon, the on-call staff, the pain management team..I didn't want to repeat the same words I myself have heard so many times before. It occurred to me that perhaps this somebody's grandmother wanted to be listened to by a patient. Someone who had experienced the care her granddaughter might not be capable of communicating right then.
"I've always felt safe and like my doctor would do a good job when I'm with them. At the very least, I have always gone home feeling better."
"Thank you. Thank you, that's kind of you to tell me. Well, I should probably be heading back up there again. Now you take care of yourself okay? Stop breaking so many bones!" She smiled at me as she reached over to unplug her cellphone charger and began wrapping the cord around the charger.
"I'll do my best. I hope your granddaughter has a quick recovery, I'll be thinking of you today."
"Bless your heart again dear, you have a wonderful day."

Admittedly I had ended my last appointment with my pediatrician feeling underwhelmed about where I was headed for primary care. Probably a hospital that was much less colorful, something less exciting and energetic, certainly nowhere that had cartoons playing on the t.v. in the waiting room! But as I thought about how my physician was telling me about "more adult care.." I realized that even if I don't feel totally enthused by the prospects, there are clearly those around me who see that I'm ready to move along: on to the care I will be receiving, and the kind I know I can give in return.

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The Uncertainty of a Good Thing

My legs were stronger than they had ever been, I hadn't fractured my tibias in years, and aside from lugging on leg braces - walking was effortless for me. I could be in my leg braces and walker for most of the school day, no complaints.


That was me shortly after my first rod operation in the third grade. It had been many months of debating and talking it over with my orthopedic, but in the end it was clear that inserting a rod into my tibia would be the best course of action. My bones would be stronger, I would stop having micro fractures from the bowing, and best of all - I'd be able to walk more comfortably! 
As with any operation though, rod operations come with their risks. At the time the biggest risk for me was migration of the rod - because I was still growing the bone could easily outgrow the rod and it could then slip elsewhere. But we were told that we would keep an eye on the rod, with well-timed x-rays every six months or so to ensure that nothing was in total disarray. 

Fast forward two years: I was now in the fifth grade and had just come out of the shower. The front of my leg was bleeding, I saw a metal tip poking through the scar tissue of my leg. I realize that this scene probably sounds incredibly painful, but I assure you that I felt nothing. In fact I was still in the mindset of going to school, I thought I'd be able to show my friends the cool piece of metal sticking out of my leg. Instead my parents whisked me off to the hospital, and I underwent surgery that same day to have it replaced. 

There are many take-aways from this little story that I just recounted. For starters, yes, every operation is going to have its risks and your healthcare providers will be the best folks to discuss what these are. However, even when we know about the risks we can't always count on when they'll happen or be prepared in the event that they do. Good things don't always have neat bow-tie Happily Ever After endings. This is especially true in medicine, I don't think there's ever any fail-proof procedure or treatment plan that fully intends on treating the patient well - but doesn't come with its weaker points. 
With that said though, it's important that when we are presented "good options" that we take them and run with them - go as far as we possibly can with it! I've had many re-rodding procedures and I've never regretted the decision to insert rods into my legs. The gains I was able to make, for my specific purposes and abilities, far outweighed any risks and potential dangers that I dealt with many years later. 

We make the choices about what happens, no life event is capable of being inherently good or bad. Just remember this -- what we make of the options and opportunities we are given determine whether or not they are good or bad. 


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