Showing posts with label disabled people and crowds. Show all posts

Hong Kong & Macau Part 1 of 2

For 2 weeks I went to Hong Kong & Macau with my family. In this first entry I write about the logistical accessibility issues of my experience. In tomorrow's entry I will cover the interpersonal accessibility issues and what it felt like to be visibly disabled in Asia! At the end of tomorrow's post I will include my usual list of tips if anyone is interested in international traveling. 


"You should be thankful that you were born in America."

"Why?"
"Many babies with disabilities born in China are institutionalized for 'research' or never leave their homes, they can't even go to school." 
A life inside the house? No school? No friends to play with? As a young child (and even now) I couldn't imagine leading such a life! 10 years ago when my parents took my older brother and I to China we were looking for Eastern medicines that might help or cure my brittle bones. Although I barely remember it I was taken to a hospital where my parents spoke to researchers who told them they could leave me with them; the hospital was an institution where I would be used for research though they couldn't promise a cure or any medical benefits. They told my parents that there were already several others with O.I. staying at the institution. Needless to say my parents didn't opt to do that and instead I was able to visit Tiananmen Square, the Great Wall, Beijing, and Hong Kong. 



Fast forward 18 years later:
Over the past two weeks I traveled to Hong Kong & Macau with my family. This time around we were not looking for medical cure-alls, we were just being tourists. As with heading into any new location (be it a state or country) I expected transportation, accessibility, and general traveling (sidewalks, curb cuts, clear paths etc) to be challenging to navigate. Keeping in mind what my parents told me about disabled people in Asia I expected totally inaccessible places however I was actually pleasantly surprised! And while it wasn't perfect there were several accessibility accommodations that Hong Kong & Macau actually does better than what I have found in the U.S.!
The island of Macau is roughly a 45min ferry ride from Hong Kong where the international airport (and our plane) landed. I was a little nervous about how much of a hassle it would be to get me on and off the ferry but the crew on board was incredibly adept! There were ramps and crew members at the ready to help hoist my manual wheelchair over the small lip to get on board; I transferred into the seat and my wheelchair was rolled away, carefully locked and stowed with the other luggage. Once we were all settled on the boat one of the crew members asked if we would be needing help to get off the ferry and onto the pier once we docked at Macau - in other words, somebody would be waiting on the island ready to push me up the long ramp to the Macau Customs & Immigration floor. Crew members and Customs Officers were always courteous and careful when pushing me over bumps and down steeper parts of ramps; there was never any issue when it came to using an elevator or chair lift and in fact my family was able to cut a couple long lines during the course of the trip because the elderly and disabled went through a separate gate.
But then I had to go to the bathroom. All the accessible bathrooms in Hong Kong and Macau were in its own room, usually located between the regular men and women's restroom. Always clearly labeled with the universal stick-figure wheelchair sign, what I first noticed about the accessible bathrooms was that the doors into the bathrooms all had a horizontal push bar that was lower and right at my level! This made opening the doors extremely easy and manageable on my own. Inside there was always enough room for my wheelchair to turn around, a lower sinker, and unlike in the US the grab-bars weren't stuck to walls 5ft away from the toilet, instead they were attached to the toilet and could be easily adjusted as necessary. I was relieved by how clean and easy everything was and never had to worry about finding an accessible bathroom that was in working order during my entire trip.

To get around Hong Kong and Macau people usually take public transportation, or a taxi (the locals tend to drive mopeds). On our first night there we were taken advantage of when the taxi driver charged us extra because we had to stow my wheelchair in the trunk (apparently the ticker automatically starts charging when the trunk is opened), after that incident we opted to just walk every where or take public transportation in Hong Kong. In Boston, where I am from, public transportation can be less than ideal. Not all the trains are accessible, sometimes elevators don't work (and there's no one around to help you), there may be absurdly large gaps between the platform and the train and other inconveniences. In Hong Kong - not only were the subways immaculately clean (no food or drinks allowed and they also had televisions to watch the news!), but they were all accessible. The platform and the train itself were always leveled and there was never any need to have a conductor come out and operate a complex chair lift to get me onto the train. One thing in particular that I found helpful was the clearly marked sign on the platform for where wheelchairs should wait. Unlike in the states I sometimes have to guess where I should wait on the platform in order to park in the allotted wheelchair space once inside the train; in Hong Kong that place is always lined up with the wheelchair symbol on the platform - my family and I always had a place on the train and there was never any pushing or shoving to get on. The terror of large bustling crowds in a small confined space like on a subway train is always an OI'ers worst nightmare.
A couple times there wasn't elevator service to the station and we got frantic and became completely lost. However we realized that throughout the stations there were Metro-Assistance telephones for the sole purpose of contacting someone who worked at the train station. When we called they always knew exactly where we were and came to our assistance within minutes, they would walk us to the exit with elevator service and help us on our way - even allowing us a free pass into the appropriate gate! Many times in Boston I have had to pay double or triple because elevator service was out, or I had to take another shuttle bus to where I actually needed to go. I am quite certain that if public transportation in Boston could be as efficient as it is in Hong Kong then that dear city would be filled with more pleasant folks!

Once at street level we were in a city that is hundreds times more busy and stuffed with people than NYC's Time Square. People fill every nook and cranny, and they are always constantly moving, chattering (loudly!), and busy bartering for lower prices. It is at once a joy yet exhausting to be in that environment, especially in Hong Kong's humid weather where rain would drizzle for a few minutes at a time - providing relief for the city's tourists while locals popped out umbrellas and expertly maneuvered to their destinations. At first I was terrified that someone would bump into me, fall on me, or swirling shopping bags would shove me aside but this never happened. Thinking back on it I don't understand how that didn't happen! No one bumped into anyone else, I rarely saw any shoving or pushing aside - movement was always fluid and continual, it was like a dance that everyone just inherently knew the steps to. The beat to this dance was dictated by the open door restaurants and street shops that lined the smooth sidewalks for miles on end. Folks would skillfully step away from the main street flow and into a shop for a few minutes, or duck into one of the mouth watering restaurants for a quick bowl of ramen or roasted duck with rice. The only complaint I have for the city is that curb cuts were less than ideal. They were always roll-able but few were ever actually level with the ground, most had a small 2 inch lip or bump that required a quick wheelie on my part - but this was a small detail and didn't impede on my overall experience. 

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Fragile Clubbing

Every time I first head inside I get nervous. My eyes adjust from the dark evening outside to the dimly lit blacker interior. For the first few minutes I am taking advantage of the random flashes of light from cameras, the fluorescent glow from the bar, and spastic dazzle of lights above the dance floor. These are one of the few occasions when my friends have to plow a way through for me, because it's safer. After we all find a table to sit down the rest of me relaxes; at this point my heart has surrendered regulating a beat to the pounding bass the DJ is spinning. Yep, my friends have talked me into another night at a dance club.. 


I must admit that I am not a club person. I don't dance, don't listen to the latest tunes to know all the latest lyrics, don't actually like the taste of alcohol, and I'm rather gun-shy (contrary to popular opinion). All of that added to a crowd of squirming, grinding, jumping, pop lock'n'dropping five feet plus strangers probably leaves you wondering Sandy, why do you even bother going to these places? And how could I forget? Throw into the mix the brittle bones and I am sure that is all grounds for the FDA to make a Warning Label. And yet a few times a month I find myself returning.  Maybe it's out of my own ignorance? Idiocy? Because I enjoy flirting with risks? The only reason I know for sure is that each and every single time I go, I end up having a ridonkulously stupendous time!
Club Safely:
  • I have only ever gone with my closest group of friends. These are the people who know my comfort level the best and some of the people in my life I feel safest with! I believe that comfort level and safety are two of the most important things when venturing out into any totally uncertain environment that someone with O.I. should consider
  • It is these same friends who I credit with the fact that I have never fractured or had any other injury while out painting the town red!
  • This law is old but never falters: Drink Responsibly! Alcohol intake for someone with O.I. has a lot of different factors that 21+ individuals should be aware of (even if you don't choose to heed all of them). Just as with anyone else, know your body's limit, do your best to make safe judgment calls, and be sure to stay within a group of friends that you trust and know well
  • If possible, get a table or booth - ask someone who works at the club if this could possibly be arranged. This is helpful when you need a place to retreat back to and it makes socializing with others who may be much taller than you easier 
  • Make sure that the accessible bathroom at the club is in working order!
  • When others approach you about dancing with you or on you, just go with your gut instinct 

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Xtreme Wheelchair Diving: In & Out of Crowds

My friend from college describes it perfectly: "It's like Moses parting the Red Sea." For those of us who use wheelchairs we appreciate the automatic path that opens up before us. It's a bubble of space that opens up for us, out of fear? Out of politeness? For the sake of saving their own toes? Whatever the reason may be, as someone with brittle bones, I like it. A lot.

When I am in my manual wheelchair my reflexes need to be cat-like. One hand needs to be ready to push forward on one wheel and then pull back on the other wheel for a quick dodge. Or if someone gets too close I might rear back on my hind wheels like a surprised horse (also known as popping a wheelie!) The whole time I'm navigating I am also spotting - psshh yeah right, not spotting for toes that get in my way, actually I am spotting for pockets of air, for open scenery, for an open space! And when I see one I will dart to it while glancing around to make sure no one else has spotted that space, and then the crowd will converge again and the process repeats itself. By now the motions are as familiar to me as untangling headphone wires. I know just how much to push or pull and where and when to be able to settle for two seconds of peaceful space. These moments of quick activity are one of the few times I actually,  I dare say, feel graceful and elegant with my disability.
Kids and adults with O.I have grown used to being automatically protective of themselves. It has become more than just instinct for me. When someone becomes too close too quickly I have already seen the part of me that they will collide with, what bone will break, and even a slight hint of what it might feel like. I imagine it's kind of like if anyone else were to remember that horrible taste in their mouth after that particular something they ate years ago. It's in part because of how protective my parents were of me as a young child, but it's also in part out of my own fear. We just don't want to get hurt again!

Then when I turned 10 and was in the 5th grade I got my first electric wheelchair. That was the moment everything began, that was when the gun for the race between Sandy and The Rest of The World went off. Diving in and out of crowds in my power wheelchair is A BLAST. Ask anyone who knows me or has seen me, it's like I am playing a game of Nintendo Wii every time I am in a crowd. I am grinning as I spot an open space and when I glance out from the corner of my eye I see someone quickly approaching, I press forward on the joystick a bit more and challenge myself to time it right: for me to get to that open space first. When I am leaving Fenway Park or any other event, friends I am with always follow behind me. "Sandy will clear the way.." is the usual agreement and I just, literally, plow ahead. It's fun, it's dangerous, and if my parents could ever know what I was up to...(well, we won't go there).
My skills at xtreme wheelchair crowd diving began in middle school. Then I perfected it during the four years of high school everyday during the 3 min of passing time between classes. There is nothing like dodging mountainous backpacks mounted on the shoulders of giant 14 to 17 year olds. It's not just the wheelchair that needs to move, but my shoulders, neck, and head need to dodge on time as well. Then in college the challenge was raised when I would head to clubs packed with people twisting their bodies to the music, the lights dimmed or in some cases completely off.

I say it's an xtreme sport because I'm never satisfied with that same bubble of open space for long. Sometimes the crowd will head towards my direction and it's time for another dart elsewhere, but most times it's because I have spotted another open space and enjoy the challenge of racing ahead to it. The unknown repetition of this motion keeps my days of sitting at right angles for 7+ hours interesting and even fun.

Xtreme Crowd Diving:

  • I am not saying that everyone with O.I should necessarily pursue this "sport" but please know that if you DO decide to try this, practice at a mall or a place with large open areas and ALWAYS be sure to be seat belted in!
  • If you accidentally run over someone's shoe or toe, please own up to it. Say "sorry" or make sure that the person is okay. You would want the same thing for you if you got hurt. 
  • When in a crowd and NO space is opening up, I have tapped people on their backs to and they have always moved aside. Most times no one hears when I say "Excuse me"
  • Use your best judgment, be safe first
  • I rarely, in fact I never pursue crowds alone. I am either with family or friends - this has helped on many occasions especially if I am accidentally bumped into or injured.  
  • When someone steps aside for you be sure to say "thanks!" If a person brusquely walks ahead of you/pushes you aside it can be interpreted as a rude gesture. Try not to be rude and always nod in acknowledgement or say thanks when someone has allowed you more space

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