Showing posts with label guest post. Show all posts

A Teen's Perspective: Sniffing Out My Superpower

The fourth post in this series comes from KG. An aspiring author, current high school student, older sister to an 8 yr old brother, and not to mention a web series actor -- KG has a wealth of stories to share. Of all the roles that KG plays in her life, she says that her most important one in her life is that of a friend to her friends & family; she is always at the ready to return what others have done for her in the name of friendship. On her down time KG enjoys singin' along to the tunes of Taylor Swift, and writing in her own blog here!

Ever since I was younger I've always wished that I was special. I know that many parents will argue that all kids are special in their own way (and I agree with that 100%), but I wanted to be REALLY special, to be unique in a way that had nothing to do with my OI. Basically, I wished that my petite body was a disguise for something big and important.

It took jumping out of my comfort zone to realize how special I already was, and still am.

In January, my dad came upon an article in the newspaper about a new, local web series called "Ghost Sniffers." The article stated that the show starred a nine-year-old ghost hunter named Faith Forge, played by FD. Both in real life and on the show, Faith has Type 1 diabetes. Her real-life twelve-year-old brother M has Aspergers and plays twin brothers Maxo and Maximilian. The article also reported that they were holding open auditions at the local library. Quickly, I jumped onto my laptop and went to the official "Ghost Sniffers" website, www.ghostsniffers.com/. I watched the two episodes that were available online at the time and I fell in love with the show. It occurred to me that if both of the main characters had disabilities, then it might not matter that I use a wheelchair and have O.I; I wondered if maybe they'd be accepting of who I am. I realized then that the only one holding me back was... me. 

Determined to give it my best shot, I memorized the lines of the two roles that I wanted to audition for and I went to the library, my stomach fluttering as if filled with a thousand angry moths searching for an escape. When I drove up in my wheelchair, JD (the writer, director and cinematographer of the show) and her family made me feel like I belonged there just as much as anybody else. After asking for some basic information JD said, "Now, I'd like you to please come behind the blue curtain over there and show me what you can do." There, I took a deep breath and began reciting my lines. Upon finishing, I was proud of my performance. JD seemed pleased too, but I couldn't be sure. 

Then I got asked the big question, "Why do you want to be on 'Ghost Sniffers'?" At first my mind went completely blank. Why am I here again? I asked myself in a panic. I hadn't really done any acting before, so why was I auditioning for an acting role?
"Well, I really like the show--" I began to say, scrambling frantically for an answer. Then I found it: "I want to do something where my disability won't stand in my way," I replied.

Anxiously, I waited up until midnight to hear back about my audition. At a quarter until four, I was roused from my sleep by a very small noise: my phone made a little "ding," indicating I'd received an email. Sleep clouded my vision and I blinked several times to clear it. Clumsily, I fumbled with my phone and began reading the email.

It said I hadn't gotten either part.

JD felt I wasn't quite the right person to play the characters I had auditioned for. She said it wasn't because I lacked talent, but because the roles I had auditioned for just weren't quite right for me. 

So... she decided to write an entirely new role for me to play instead.

"Ghost Sniffers" explores the question, "What if every kid with a disability also had a superpower?" Basically, what if the genetic switch that activates disabilities also triggers super abilities to compensate? It's said that when one door closes, another door opens, after all.
After reading the email all the way through, I rushed down the hall as fast as I could to wake my parents. Yes, it was then four in the morning, but if I didn't tell someone, I was going to burst with excitement.

I've come to realize that I have my own super abilities, not just on the set, but off set, too. The experience of jumping out of my comfort zone to audition for the show has taught me a lot about myself. As it turns out, my fragile body really is a disguise for something special. In fact, it's a disguise so deceiving that even I fell for it. My brittle bones disguise the bright light within me. And now that I've realized that, I can finally let the light shine through. 

Posted in , , | Leave a comment

A Teen's Perspective: We're Pretty Badass

The second post in this series comes from SD who shares her thoughts on how she finds her self confidence. SD is a 16 year old who plays the ukulele, will be the President of the student body at her high school next year, and her favorite lyric comes from Stornoway "on my way out for the very last time / on my doorstep straight into the sunshine / walking west and following the coastline looking for a sea change." 


I like to pretend my disability does not have an effect. I like to pretend that a handicap is like a hair color- an insignificant physical aspect, a small portion of who I am. And in a lot of ways, that’s true. In almost every way, my condition does not matter. It should not matter. I tell people it has no actual significance, that it should not determine anything in my life. This attitude has helped me become the social, successful student I am today. It’s shown people that I do not let the obvious get in my way. Because really, things like hair color and handicap do not matter in the big picture. What matters is who you are on the inside.
Unfortunately, I’ve found having a disability sours our sense of worth and stains our confidence. At least for me. Because in the back of my mind, there is this ugly little voice that says “You’re different.” It’s hard to forget when you’re unable to dance at school dances, run at the park with your friends, and ride easily in your boyfriend’s car. So I dance in my chair. I make my friends give me piggy back rides. I ask my boyfriend take my chair apart so it fits into his Prelude.  But even as you counteract all the obstacles OI throws in your face, it still is serving as a reminder of why you must overcome these issues in the first place.
I’ve done some thinking and have determined that it is time for OI teenagers to take control and create confidence for themselves! Here are five examples of what we can do to feel beautiful with our disability and confident in ourselves.

1. Don't wait for a Hello!
Sometimes our disability seems to act like an invisibility cloak, like people don’t want to talk to us. I’ve also noticed that at parties or in groups, people will converse over our heads, not bothering to tilt their heads and lok us in the eye. That’s okay. We do not have control of how people treat us. However, we do have control of our own actions. Be assertive! Say hello first! Don’t wait for people to include you. Include yourself while helping them realize that you are worth being included. 

2. Look amazing! (Hint: you already do)
It may seem a little hypocritical to say that the outside doesn’t matter and then encourage you to look your best. But your appearance matters in how it makes you feel. If you feel beautiful, then there is a higher chance you will act in beauty and compassion towards others. Enhance your already amazing features, dress in styles that flatter and compliment your body, and express yourself through your own unique style. Whatever you do to help you in your confidence, do it only for yourself. Do not try to please anyone else with your appearance.

3. Do what you love.
A great way to boost self esteem is to become involved in activities you love. Be involved with clubs and groups, with people who share your enthusiasm. If you are active in what you love, you will truer to yourself and meet amazing people who support you. Take no notice of what people say you “should” be involved in, or what social code dictates you be confined to. Stay true to what you love.

4. Forget the others.

People love to have opinions. All people. I, for one, have about a million opinions on things. It’s just what we do. We judge and we objectify and we determine and we interpret what the world means to our minds.  You see, people forming opinions is commonplace and should not affect you. Whatever they think about you is inconsequential to how you feel about yourself. Forget those who put you down. Surround yourself with positive people who have confidence and help you to feel stronger in yourself.

5. Laugh!

This may sound simple and that's because it is. If you laugh and smile you're bound to feel better, no matter how badly your day is going. Laugh at simple things and smile at the beauty of the world.

I just watched Seeking a Friend for the End of the World. (If you haven’t seen it yet, you should. Two words: Steve. Carrell).  It reinforced the idea that I had been mulling over for a while now- that time is fleeting and it’s a waste to worry. It’s a waste to hate yourself. It’s wasteful to be critical, to put yourself down. Life is so beautiful you guys! I don’t know about you, but I am so psyched to be here at all. Yes, I am disabled. But if I let it deter me from being the person I want to be, then I’ve let OI win. We’re pretty badass, if you ask me. You shouldn’t let that get to your head though, because everyone has difficulties. That’s the thing- we aren’t the only ones that are hurting; everyone does. And everyone struggles with learning to love themselves.  Once the world’s teenagers realize that our individual selves are bigger than our problems, confidence will surely follow. 

Posted in , , , , | 1 Comment

Wrap-Up

Barrier Breaking Tip: In the face of something that scares you, be patient with yourself. Fleeing at first sight of fear means that you've given up without a fight. Sticking around, even if it's just a few seconds at a time, means you've already begun taking jabs towards overcoming your fear.


Posted in , , , | Leave a comment
Copyright © 2011 Perfectly Imperfecta. Powered by Blogger.

Search