Showing posts with label post-op care. Show all posts

Nothing Else I'd Rather Be Doing

For a few seconds I believe the bed has swallowed my entire body, leaving only my eyeballs. At first I can feel nothing else, and my brain seems to still be wiping the dredges of the anesthesia off - for the time being it can only send a few bursts of signals to my eyes. All I see are the glaringly obnoxious fluorescent lights above, then the curtain divider, and then from the corner of my eyes the machines with all of its wires that are all heading in my direction.
Meanwhile the room has begun a slow counterclockwise tumble: the ceiling melts into the wall, the fluorescent lights look like they're about to fall on to me and then there it is -- the tips of my fingers brush past the top of the cast. The familiar dimpled ridge texture of the fiberglass cast sends my brain shooting down memory lane, and then it all comes back to me: a rod surgery on my left tibia.

I yak up stomach bile as I always do after operations. It's the final signal that says: okay your body is awake now. The nurse holds out a small cup of water for me as I hungrily gulp it down, like it's some kind of mirage that might disappear on me any second.
It's sometime between when I first remember what has happened and the time I am given my first sips of water that the pain hits.
"It was a long surgery, Sandy. Far longer than anyone expected. It lasted 6 hours and Dr. Shapiro had to make 4 breaks into the bones." The nurse tells me.
Still not really able to form complete thoughts yet, I make a sound that is something between a groan and a cry. My hands grasp at the fiberglass cast, fingers scratching at a leg that only that morning I had been able to touch the skin of. Now it lay in several pieces, with all kinds of hardware screwed into the bone - that thought alone made me squirm.
"Don't be afraid to push the pain button, okay?" She put a small buzzer into my right hand, the one that wasn't already swamped with I.V.'s swarming about. I nodded my head, half rolling my eyes to tell her that I already know all too well what the pain button does.

After my vitals are checked again, and a room upstairs has opened up I am rolled to the 9th floor in a room that is across from the nurse's station. It's the room I am always in after rod surgeries, a single room to myself with the border of animal decorations going around the walls. The first night after surgery is always the worst for me. The throb of pain ebbs and flows all throughout the night, the morphine makes me frantically itchy, and my dreams are a mix of lucid reality with the backdrop of pain medication. In short: I have no idea what is going on.
Several times an hour various nurses will come and check on my vitals. But the blood pressure stands that give my arm a gentle hug at midnight, then 1AM, 2AM, 3AM.. has appeared to me as various morphed alien-octopus creatures with tentacles that squeeze for a bit then get ripped off.

In the dim of the night light, and mixed with the neon glow of the machines I could tell he was wearing a large blue cookie monster t-shirt. Must be one of the perks of working at Children's Hospital I thought. Rarely do I remember anything about my stays as an inpatient, especially during the first night after an operation - but for whatever reason the guy checking my vitals that night made an impression. He was going about his business, jotting down my numbers and adjusting my oxygen mask when all of a sudden I blurted out:
"Wouldn't you rather be somewhere else?" 
He stopped what he was doing and looked down at me, smiling,
"No of course not! If I were anywhere else I wouldn't be able to help you and there's nothing else I would rather be doing." 


To this day I have no idea what spurred on my question. I don't remember what my thoughts were before I asked it, but it's pretty obvious that I wanted to be somewhere far away from the 9th floor of the Children's Hospital in-patient floor. But his response comforted me the rest of that night, I remember I slept as comfortably as I could knowing that despite my drugged and broken state of being - there was someone in the world who wanted to be there to help hold me together.

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If I Had a Million Dollars...

American superstar Beyoncé recently gave birth to a daughter, Blue Ivy Carter. Among the reports of this new addition for Beyoncé and her husband Jay-Z is the 'over the top demands' they requested for the arrival of their first born, at the cost of a mere 1.3 million dollars... 
Since my orthopedic doctor has been seeing me since birth, my parents used to joke that I too get VIP service. I never wait in the waiting room and am able to directly page him when a fracture happens; rarely has he ever said that he won't be able to see me the same day a break happens. (It might be much later on in the day, after he has performed about 3 other operations on other O.I. patients..but it's always worth the wait).
So, what if I could have "swanky" hospital treatment at $1.3 million - what would I ask for?

1. A wave less waterbed that awaits me on the x-ray table. Instead of just lying on the hard and cold x-ray table, I would like the cover of the mattress to be silk covered - please and thank you. Wave less water beds are made up of water and air that can be set to personal preferences in terms of water to air ratio, and amount of wave reduction. Ideally something that takes the pressure off and is able to support fractures without me holding an injured area. Also, if a duplicate of that waterbed mattress could also be waiting for me in the cast room - that would be great too.

2. An iPad that is connected to the hospital network. These days you are able to send an 'electronic page' to doctors within the hospital network, and all of the x-rays are uploaded digitally into the hospital records. With an internally connected iPad I would be able to see the x-ray being uploaded in real time AND let my doctor know that I was done with the x-ray and will see him soon in the cast room.

3. Designer cast fashions. How awesome would it be if I could have a Ralph Lauren Polo cast design? Complete, of course, with the signature polo emblem printed on the cast. Or maybe the classic Paul Frank monkey face? Or even better, to have my favorite Vera Bradley pattern cover a broken arm? (In case you're wondering, it's java blue..) All casts would be waterproof of course.

4. A security guard. He'll mostly be for eye candy purposes but also block younger patients from accidentally bumping, running, hopping, skipping, or crawling onto me. Oh, and he'll warn off the hospital clowns...

5. On demand supply of green jell-o. Because I like green jell-o and I know the hospital has endless amounts of it. And cherry popsicles too, please and thank you. Hold the ginger ale because I know the hospital makes killer milk shakes. STAT!

6. Personal wheelchair and wheelchair pusher. Sometimes if I have a broken arm or leg it makes sitting up in my regular chair difficult or just impossible. It would be nice to have a gel-seat cushion manual wheelchair waiting for me at the hospital, and a charming conversational wheelchair pusher (personally interviewed by me first) to keep me company as well.

7. Oxygen bar in my recovery room. Because why not? Let's make that oxygen mask more fun! Dude seriously -- could you imagine this experience while on codeine and morphine? Maybe I'd be able to discover the solution to the healthcare problem in this country!

8. On Demand cable or Netflix hook-up in my post-surgery room. There's only so much day time television a person on morphine and codeine can handle. Well, I'm just sayin'... What about a shelf of the top 10 NYTimes best sellers? Or the top rack of the gossip magazines in grocery store check out lines? Or an iTunes gift card so that I can download all the addicting app games on that iPad? How much money do I have left at this point? Heck -- let's just get'em all!

... Okay, okay, I've had my fun of day-dreaming. As you can see there are probably a million other things that I could dream-up that would make my hospital stays and appointments more comfortable. But the point is that unlike Beyoncé, I have figured out what I NEED to get better. 80% of that knowledge is from personal life experiences, and the other 20% comes from a mixture of trusting my doctors and their own knowledge. The next time you are at a crossroads of decisions with your doctors, think about the fine lines that differ between: medical need, requirements, and wants! 

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Wrap-Up

Welcome to November!
For folks on the East coast (U.S.) it looks as though we're in for a looooong winter, but with the way things have been going I trust that we'll be able to keep each other company :-)


Here are the posts from this past week:
  • Tuesday: This post was about post-op visitors after my rod surgery & includes a few tips 
  • Thursday: As a hearing-impaired student, I had to learn early on how to advocate for myself


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Post-Op Visitors, Be Warned!

"These saltines are STUPID!" I screamed. I clutched the packet of crackers and zinged it like a frisbee across the room. Supposedly I hit the nurse trying to get me to eat. I say supposedly because I have no recollection of any of this happening. That part of the story all comes from friends who visited after my operation.

The surgery had gone on for at least 6 hours, far longer than what my orthopedic surgeon had initially thought. My left tibia required re-rodding, several screws, a metal plate, and some bone glue-paste. Needless to say a lot had happened to my body and when I woke up I was less than pleasant. The anesthetic had yet to wear off, the anti-nausea medicine had yet to kick-in, after the hundredth "you're in the recovery room now.." I still did not understand where I was... and well, I felt like a disaster. I felt like a hurricane that was almost about to die out -- with a few more hours of rain to pour out and a couple more houses in my path to destroy. Angry, irritable, uncomfortable, and feverish are among a few of the words that might describe my state of being when I first wake up from surgery. 


With that said though I always enjoy having visitors! Aside from the fact that I rely on THEM to tell me what the hell is going on, having familiar faces aside from that of the residents, nurses, and hospital volunteers is always comforting. Aside from feeling physically in pain or uncomfortable, I am usually also angry because I'm thinking it's the STUPID O.I.'s fault that I am even here to begin with! Even if I don't ever actually utter those words, you can read them clear as day in the frowns and scowl lines in my forehead and face.

"Hey, I'm going to pick up some McDonald's what do you want?"
"Um I don't think I can eat that stuff yet." I replied glumly.
"I don't care. I'm going to smuggle it in. What do you want? A cheeseburger? Fries? Milkshake?" My friend M was on his way to visit, and if there's one thing you need to know about M it's that having fun always comes first... what other people think doesn't even make it on his list of priorities. When he arrives it is nearly evening, my family had gone home and even I could tell that visiting hours were definitely over.
"How did you get in here?"
"I said I was your uncle." I smiled and before he placed the bag of grease-infested take-out next to me I could already smell my appetite returning to the land-of-the-living. 
"Oh and here.. My mother made these cookies for you." Had any nurse or doctor seen the mound of junk food in front of me I probably would have been re-admitted for surgery, only this time to unclog my cardiac veins! I pulled myself up to a sitting position and looked dizzily at the array before me.
"Thanks, wow I don't .. even know... what I'm supposed to do with all of this right now" I murmured. 
For the rest of that evening M managed to get me out of the hospital bed and into a wheelchair. We raced down the halls, sang the YMCA song (by ourselves) at the patient entertainment center, and I watched as he failed miserably at flirting with the nurses. By the time he had to go I was exhausted and didn't even need any pain medication to help me fall asleep. 

Sometimes the best medicine IS really laughing and there's no other time I have known this to be true than having friends come visit post-op!



Tips for Post-Op Visiting:
  •  When I was younger (in elementary and middle school) my friends didn't visit me at the hospital; instead it was more appropriate for them to send cards as a class! Or visit me at home when I was less tangled up in wires/bedridden 
  • Some hospitals allow visitors to send emails to patients, or make direct phone calls into the room. Be sure to check!
  • Be calm and your usual self. Sometimes it makes it difficult for the patient (who may be under a lot of pain medication..) to keep up with overly excited or enthused visitors
  • You don't need to go over the top with gifts/toys/distractions. Many times I have found that just sitting and watching the ridiculous daytime television shows with a friend is just as good!
  • Despite what I wrote above, be sure to check before bringing in food for the patient. You also might not know about allergies that other patients on the ward may have
  • Always, always, respect the nurse / doctor / resident on the patient's case! As the professional medical staff they need access to the patient and to be able to provide the best care -- sometimes this might mean clearing the room or other privacy
  • Try to restrain yourself from asking a million and one questions about what's going on and when will you be out of the hospital! I know that this can be tough but it's always best to go with what the patient is willing to volunteer or look to a medical person on the case
  • Ask before you re-arrange blankets, pillows, or even the room. A lot of times the furniture in the room is set-up in a certain way for easy transferring or for other medical reasons
  • Most of the time when people are in the hospital they are TIRED. It's helpful to pick-up on hints when a person you are visiting seems exhausted or is beginning to yawn a lot... just ask if they need to rest or if you should leave. 
  • Just hang out and keep the patient company! That's really all what this boils down to -- I'm sure that the patient will always be appreciative of your efforts and the time you took to stop by! =) 

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