Showing posts with label awkward moments. Show all posts

All That Silence

My head is at the top of the table marked by the strip of yellow tape. Above me a space-age looking machine whirs above, there's a flash of clear light and the cross-hairs that were projected onto a point on my femur are suddenly gone.
The silence is palpable. It tastes something between desert dehydration and post-vomit bile. These are the seconds when I am trying to remain still, my leg quivers nervously from pain and from not wanting to know: is it broken? Is it badly broken? Will it need surgery? How long in the cast this time? How did all of this happen so quickly? Could I have done something to prevent it?
"Okay you can relax now" the radiologist tells me. Are you kidding?! I want to scream at her. This is not the moment where I can just "relax now.." this is when I wait for the picture to load up onto the screen. Lying on the table I awkwardly crane my neck to see if I can see the computer screen, I catch a glimpse of the x-ray slowly loading onto the monitor, but I'm too far away for even my own x-ray vision to see anything accurately. There is more silence and more nervous sweaty quivering until she tells me "you can have a seat in the waiting room, we'll call your name when it's ready." There is more time for silence out there.

--
The high school gymnasium was stuffed with row after row of dying-to-be-done-with-high-school teens. All four entrances into the gym could not be propped up any wider, no amount of silly teen flirting could tempt even the tiniest wind to relieve us from the insufferable heat. We are seniors and it is late spring of 2005, it is our awards ceremony for the graduating class.
"This next award goes to...." In fact I don't even remember what I was awarded for. There were things from the debate team, from the school newspaper, from the literary magazine, from the English department, and some other thing. "...For the student who has overcome challenges, persevered.." And suddenly the entire front row in which I was sitting turned to look at me. I pushed my manual wheelchair to the podium where the principal handed me a plaque. I shook his hand, took the plaque, and then the applause died down as the crowd awaited the next announcement, the next student. But the wooden frame was too heavy and bulky to hold in one hand and push with the other. The crowd of curious eyes watched as I probably fumbled a bit, trying to switch the plaque to my other hand. Then I realized that wouldn't work either, in came the seconds of silence waiting and watching for me to figure it out.
At the time and at that moment what I didn't realize was everyone in that room knew I'd be able to figure it out.

--
I could recount many other moments of silence. Most of which I am anything but comfortable in, and maybe that's just because I'm a person who likes lots of activity and fast-thinking. Silence usually brings a lot of waiting, watching, staring, observing, worrying, and lots of time that seems completely unguided. Shouldn't I be doing something right now? Is something I am constantly thinking, it can get to be too much. To say that I am terrible at silence would be an understatement. I've been trying to make some effort at being more comfortable in silence - and for someone who has an opinion about everything - that is quite a tall order. Without getting too zen or meditative (because I know nothing about either of those subjects), this is what I know so far about silence: it has a mind of its own and it doesn't include yours, it marches to the beat of its own drum unheard by anyone, and like a kite it'll pick up and leave on the next wind that blows past - not by any breath you blow on it.


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Seriously Puberty, What the Hell?

Everything got weird for me around seventh and eighth grade. My breaks began picking up in pace again, I was confused about my friends - the girls whom I wanted to be friends with vs. the girls whom I felt I should be friends with; also there were boys (and since when are they never weird?), I wasn't sure if I had all the coolest Trapper-Keepers and neon colored pencils, and my collection of Pogs was still something I went home to play with. Oh yeah and umm... my body was being more awkward than it already was. Every day it seemed like I woke up to a body that became a little bit more of a stranger to me. And there I had been thinking but no one knows my body better than me!

Ugh puberty. Even as I write this my face is cringing. Why do our bodies pick the most uncertain time of our life to morph into more certain beings?! There are some things that were just meant to be purposely confusing and never make any sense, like ever.  

Before puberty my body was already strange, but it was a strangeness that I had known since birth. It was a strangeness that I understood and I could point to certain bowed areas or limbs and tell you a story behind each; and every story had a happily ever after ending. During this phase it seemed like every part of my body was beginning in the middle of some random Choose Your Own Adventure book except I never got to choose where it would wind up. Someone else was choosing for me. And every morning I woke up pleading can I just have ONE say in just ONE thing PUHHHLEASE?! Always to no avail.

As strange as this time was for me physically, I did find some odd comfort in the fact that all my friends were going through a similar weirdness. Finally, our bodies had something in common even if it was the most disgusting awkward commonality ever. I could deal. I went to a school system where the unit of 'Our Growing & Changing Bodies' was addressed in science class in the 6th grade. Vocab lists for each unit consisted of words like: fallopian tubes, uterus, urethra...and we were quizzed on the menstrual cycle like kindergartners learning how a chick grows in an egg. My friends and I would giggle in the back of the room; if ever you wanted to see a classroom chock full with invisible Berlin Walls between every boy and girl, just go to any middle school class that has a similar curriculum.

My parents signed the permission slip that allowed me to participate in the class. I come from a culture that just doesn't talk about human sexuality, so you can just forget about that conversation with my parents because it never happened. They sent me off to school probably hoping that all my brimming curiosities would be fulfilled. So I sat there trying to keep up with the worksheets and fill in the blank quizzes, and yet I still felt like I was learning about some species Earthlings had just discovered on Mars. The 'growing & changing' bodies of girls on the worksheets never looked like mine, the books we were given had arrows and labels stemming from the pictures that meant nothing to me. When I tried to over lay those pictures on to my own body it was like trying to navigate through the Bermuda Triangle with a map created in Australia - everything seemed misaligned, backwards, and destined to point me towards some lost vacuum in the sea.

I'm not sure when it was that I finally decided to hell with this, I'm just going to let it happen whatever it is. But at some point I did. It was probably because after awhile I decided I can't keep up with trying to figure out everything that my body is doing. I've never been able to explain every aspect of what's going on, it was like trying to ask my parents why do I have O.I. and no one else in our family? The answer is: because that's the way it is, and that's just how it happened.
After the initial two or three years of awkwardness things settled back again. Sure I had to get to know myself in my own skin again - but when I looked around I realized it's what everyone else was doing too and it seems that's ultimately what puberty is all about.  

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Dear Toilet-Paper-Allll-the-Way-Over-There,

Since you spend your days a convenient just-out-of-reach-feet from the toilet, and your view of the outside world is only gleaned from the millimeters of space between the door and stall walls.. let me take a moment to tell you exactly how it is out there:

My bladder was damn near ready to burst by the time that woman finally came out of the wheelchair accessible stall. 
"Oh I'm sorry.." she says guiltily. She exits by painfully shuffling on the balls of her feet that are perched at a harrowing 85 degree angle, five inches from the floor. This sends my otherwise forgiving demeanor somewhere far out into space. 
"It's fine" I mutter. 
The second she clears enough space for me to swoop in I make the dive into the stall. She stands by the stall door, one hand holding it open and the other struggling with a run in her pantyhose. 
"I got it, thanks." One foot tilts upwards to bring the stall door shut and my hand reaches up to slide the bolt into place - jiggling it just enough to make sure that it is secure. 

At this point the urgency has almost reached that point of no return. I have got to go, right now. 

The rest of my motions are thanks to muscle memory automation: angle the wheelchair just right, unzip my fly, jeans down, transfer over, and aaahhh the release is cathartic. But all of that is quickly dashed when I see your endlessly fluffy self smirking all the way over there. 

And it isn't until that point that I realize I've stumbled into someone else's tense family reunion I wasn't even invited to. Oops. 
There are your relatives: Cousin Grab Bar, Grandma Dispenser, Great Aunt Toilet, your hipster younger brother Automatic Flush, your awkward step-sister Feminine Product-Disposal, and of course the head-of-household your mother Baby Changing-Area. Everyone is looking at me as if I were the one who forced your dad Mr. Urinal to leave your mother high and dry; and right when I burst into the scene you were all talking about what a heartless home-wrecker I am. 

I'm sorry to break the news to you but it wasn't me. 

I just came to do what I need to do, then I'll be out of your way and out of your family business. But first you've got to let me take care of my business. You see, that's what you don't understand since you never leave these four walls - this is how the world works outside of a stall. 
Quite frankly ignoring me by turning to face the other way is just childish. It's time you grew up and learned to play by the rules. For instance Cousin Grab Bar is exactly 42inches long and about a foot from the rear wall. Great Aunt Toilet is an appropriate 17inches tall. Even your mother must abide by regulations that limit her maternal reach as a protruding object! What makes you so darned special that you are allowed to hang a lofty 5ft away and 2ft above my head? Hate to dole you out a roll of less-than-soft reality, but at the end of the day you are flushed down the drain! And then you are replaced without a second thought to whatever fond memories you may have had with your family. 

They tell me that your time in this life is measured by your deeds and not by your years. So come on already, let me be your opportunity to do a good deed!
No? Fine. You're a stubborn one. I'll get up because your Cousin Grab Bar will lend me a hand, stand on the foot rests of my wheelchair, reach over and snag you anyway. Oh, I should mention that this next part might hurt a bit: 
I'm going to pull you by your ear, drag you out and wrap you around Cousin Grab Bar a few times. Then I'm going sit back down and do what I first came here to do and leave you embracing your Cousin. You think you're stubborn? Please, I invented that concept! You will learn to be purposeful, to love your family, and to practice doing good deeds if it's the last thing I do!

Tough lovingly yours,
Sandy 


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Dear Person Staring at Me,

By nature I'm not a very confrontational person so I'll try to be as civil as possible. I should warn you that what follows may make you quite a bit uncomfortable -- I am not sorry for that.



This morning when I got out of bed and slid into my wheelchair I had to be very careful. I had to take care to make sure that my wheelchair was locked, that it was close enough to my bed, and that my slide over was properly aimed to land my rear into the seat. If even one thing is out of line I would fall to a very painful injury, resulting in an inevitable fracture (probably my leg). Just imagine an enormous cast on a small person speeding down the sidewalk - I would have given you another thing to stare at. But hell, I'm not about to give you THAT satisfaction! So on a regular day, that is how my morning begins: with caution and specific purpose that my actions do not draw more attention to myself. 

After I get out of the shower (taking care to not slip!) I get dressed. I have made sure that my clothes do not have large plastic jewels sewn on them, do not have Justin Bieber's face plastered on it, or Hannah Montana emblazoned on the front. This is all in a conscious attempt to get you to take me seriously. The clothes that I have on have sometimes required tailoring, and a lot of patience in finding. At this point I've brushed my hair and pulled it into the usual pony tail, trying my best to tame the obnoxious curl in the middle of my forehead; finally, I have looked at the completed 'me' in the mirror and decide: Do I look presentable? Do I seem approachable? Do I look my age? Do I look capable? After being satisfied with those answers I leave my house and enter your line of vision. 
When I leave my house and catch your curious gaze, I start to wonder -- did I leave my fly down? Is my shirt buttoned wrong? Is my hair being unruly? Is breakfast on my face? With a quick flip of my phone I discreetly snap a picture of myself and see that all is well. Everything is in its 'just' place. But your blank stare cues me into something being off, that something just isn't quite right. When I was younger I used to think that the mirrors in my house were somehow misleading. I thought my parents were playing some trick on me. Maybe the mirrors in my house were showing a 'kinder' and 'easier on the eyes' version of myself than what the rest of the world sees? Had you been there on the day I realized the mirrors were like all the other mirrors in the world, I believe you would think twice about that sidelong glance. 

But I'm going to be brutally honest right now: I have spent most of my life learning how to adapt to your expectations, and I'm not about to adapt my physical appearance to your expectations too. Sorry, genetics doesn't allow it. There isn't a store that I can go to in order to buy a taller skeletal frame. There is no VitaminWater flavor that will add strength to my bones. There is no magical helmet that will make my head more 'proportional' to the rest of my body. There are no facial creams that will make my face less triangular. There are no jackets that will forever fix my barrel shaped chest and rib cage. Whatever whimsical dream, fantasy, panacea, wish you could possibly come up with -- trust me, I have already thought it up. And it all comes to the same conclusion: none of that exists. Instead, my entire life has been about taking what exists and making the best out of it. But of course your curious eyes don't see that in the quick glance you have taken, or the long gaze you are taking from the corner of your eyes. 
So for just this one moment in my day, how about you adapt to me? Adapt to my existence! Conform to my expectations of how people should treat others! Go beyond my standards of what being open-minded means! Surprise me! 

For once, how about you break this barrier for me? Try it sometime, you may find yourself staring within yourself instead of at me. 

Respectfully yours, 
Sandy 

*Sometimes it's good to vent* 

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Teenage (disabled) Dirtbag

I remember in middle and high school I always wished the world would stop spinning for just a second so that I could hop off and catch my breath. I wanted a break from the awkwardness, from the drama, the emotions, the pressure, the expectations, the anger, and especially from whatever the hell it was my body was (or was not) doing. 
In high school I tried hard to blend in but I also wanted to maintain and find some part of my identity that wasn't so apparent...something other than my very visually obvious disability. The weird, awkward, physically different, deformed, or genetic mutant isn't exactly the kind of 'unique' identity that is easy for anyone to embrace, never mind a teenager in the midst of an already changing body and emotional cooker. Needless to say I did everything in my power to ignore all of that 'stuff.' I think that these thoughts and their implications floated through my brain but I never really took the time to process them as a teenager, I don't think I even knew how or what to do with the thoughts I had in my head. They were just there and I quietly stored them all away somewhere, secretly wishing there was an adult who would show me how this 'stuff' all works -- but of course what teenager would willingly and openly admit to that?! As the only one in my family with O.I. and since I was the only physically disabled/wheelchair-user in school -- I really didn't have anyone to talk to about this 'stuff.' I never went to any camps that are offered today, and the only time I ever saw someone else with O.I. was on the off chance I awkwardly eyed someone with it in the hospital waiting room. 



My hope for this post is that maybe some other high schooler with (or without) O.I. might find this useful, maybe that young person will not dread another day of school, or maybe she or he will not be afraid of themselves anymore. None of these things will happen over night (no matter how carefully you read my advice!!) it will take days, months, even years of work within yourself. But I promise you, it can get better. But there's work and I'm sorry to say that the world isn't going to be handed to you, it won't always be ready and waiting to accommodate you every step of the way. 
1. Give other people a chance. 
Maybe most of your other classmates at school don't have a disability or have no idea what O.I. is. But that shouldn't matter and in my opinion I think it's unfair for you to expect them to know how to treat you or what not to do. If you don't want them to assume that you are stupid, incapable of learning, or unsociable -- then don't assume that everyone will be cruel, judgmental, and ignorant. Sometimes it might fall on you to take the initiative or to be the bigger person and go out of your way to be the friendly one first, but 9 times out of 10 (in my experience) being nice pays off! This also means to give other people a chance to HELP YOU. I have never been good at this but I am learning! Letting others know what you need assistance with encourages understanding, compassion, and teaches people how to treat others with disabilities. 

2. It's only a big deal if you make it one. 
This was one of my 'defensive' mechanisms for quite sometime and it probably still is. Until I began this blog I never made O.I. a large part of my life, I rarely even brought it up and just more or less pretended it didn't exist. Now, I'm NOT saying that you SHOULD pretend it doesn't exist -- but what I am saying is that the way you carry yourself, talk with others, the smile on your face, and your overall attitude has a lot to do with whether or not 'the outside world' will find you approachable. This can be difficult because if you're stuck in a long leg cast for half the year, it's a bit logistically hard to "pretend OI doesn't exist" or not make your disability a big deal. But even if on the outside it may appear that you are struggling - your personality, mental state, and your attitude can speak volumes and overshadow everything else. I know that this may sound like a phony magic trick but it's not!! Being able to turn an unfortunate event into a joke or making light of a situation are ways that you can level the playing ground for others and show people that if it's not something that bothers you, then by all means it should not bother them. 

3. Do what makes you comfortable.
Trust me, everyone else is just as awkward and uncomfortable as you are - it's just all experienced in a different way. This doesn't mean that you should dig yourself deeper into your comfort zone (otherwise you wouldn't be learning or developing yourself!), instead it's important to try new things and put yourself out there; however, do so within the boundaries that YOU know you are comfortable with. 

4. Talk it out.
In high school I had one or two teachers who I was able to be close with. Although no one else in school had O.I. or a physical disability, it was apparent to me that I had to find someway to get the thoughts that drifted in and out of my head 'out there.' I found that I didn't know how to talk to my friends about it, I was probably too afraid that they wouldn't understand or would just flat-out laugh at me. So instead I befriended my favorite teachers, and although I was never sure that they felt that they could give me 'proper' guidance -- I learned a lot about myself! Being able to verbalize what I felt or was going through helped me realize what the problems were or the issues that I was struggling with better; at the very least, it helped that my struggles were not just all tangled up inside my head and in my chest. Somewhere in school - whether it's your favorite teacher, guidance counselor, your aide, etc. I believe that there is always an adult who is willing to listen and pay attention to you, even if they can't give you the answers that you so badly want. 



I'm just a teenage dirtbag baby like you. 

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Disability & the Un-wanted "Fame"

Having a rare condition means that being noticed is just a part of the package. If I were a product on a store shelf I would have a WARNING label and it would probably read something like this:


WARNING: Will draw unwanted attention and may break from little to no apparent reason. Read safety manual before operating; DO NOT leave unattended with children 10 years and under. 
Store Policy: No returns, refunds, or exchanges after purchasing. All sales are final!

But since I am not a product on a store shelf and I'm an actual live breathing human being -- I instead have an invisible sign that says:

Currently accepting applications from the shadiest characters of society to offer me their 2 cents. Must submit applications by interrupting my morning routine, while I am eating lunch, or while I am otherwise minding my own business. Sanity and logic are not required for this conversation.


Seriously. I am sure some of you must know what I am talking about right?! I can't be the only O.I.'er out there who gets told all kinds of special comments from fellow-earthlings that roam this planet! 
"God bless you dear!" (My reaction to this has been "but I didn't sneeze!")
"Jesus will save you." (I wasn't aware I needed saving. What's going on? Is there a fire?)
"You are just so amazing." (Said to me out-of-the-blue by Random Stranger).
"I don't know how you do what you do." (I breathe the same air you do, buddy). 

There is a sense of anonymity that I have never known. In school I remember complaining to my friends that if they skipped a lecture it would be unnoticeable, but if I were to skip a class the professor would immediately notice -- and in fact they did! Where's the girl in the wheelchair? I have also been introduced like this before, Have you met Sandy? She's that girl in the wheelchair. The small one, I'm sure you've seen her zipping around campus. 
What's worse is when my lack of anonymity is flipped and I am expected to know EVERYONE ELSE in the world. "OMG YOU DON'T REMEMBER ME?! BUT I REMEMBER YOU!" Well obviously you remember me, I am (my wheelchair is) kind of ... uhh.. difficult to forget and misplace. I used to feel bad when I failed to recognize someone when they so clearly remember me, now I have learned to play it off on my general social-awkwardness to begin with.   

If I go to any store, restaurant, movie theater, or any other establishment more than twice I begin to get recognized by the people working there. I'll see it in their stares, oh she's here again. I am going to go talk to her and make her feel as awkward as possible. From what social interactions I have observed, it is my understanding that when two strangers make small-talk with one another it is usually because they have something in common. But with me this never seems to be the case. Or at least I don't plunge far enough into the awkward-conversation, not far enough to find out what I could possibly have in common with this person who is looking at me like they just found a lost puppy they would love to adopt. 
Also, it is never exactly small-talk that I am having with this stranger. I am not one for small-talk and in fact I despise it, but I'm pretty sure no small-talk involves some blunt observation of another person. How come my friends never have small-talk that goes like this:
"Wow you're short!"
"Yep."
"So how tall are you?"
"Exactly a yard."
"That's so cool! Have a nice day!" 
"Umm yeah." 

Or 80% of the time it is not about me but my chair:
"Hey, nice chair!"
"Thanks."
"How much does it cost?"
"A couple thousand dollars I think."
"Can I ride on the back?"
"Umm.. no..I .. don't really know you.." 


Sometimes I wonder what it's like to be able to go through an entire day without a stranger trying to talk to me. What is it like to not be recognized by people you don't even know? What is it like to not have your existence acknowledged by random beings? How does it feel to go from place to place without any history of you being there before? Does it make you feel worse to go into a doctor's office and not be greeted with warm and knowing smiles by everyone in the building? Depending on the day and my mood my answer varies, but in general I've come to get used to it. I take all the awkwardness and strange behavior in stride and tell myself that this is all a part of the package... I mean really what else is there to do?? Because in case you hadn't noticed yet: this package does NOT come with an instruction manual. 

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Top 5 Awkward Moments

My friends enjoy teasing me for these and I have come to accept that I cannot go anywhere without at least one awkward moment.


1. Don't text and drive. Even if it's your power wheelchair. One time I was busy texting and soon found my head met the rear-end that belonged to a short old lady.

2. That time I only had 3 wheels on my chair. One of my rear wheels had fallen off - allegedly because one of my closest friends had been sitting on the back of it too much and it took the wheelchair company WAY too long to get a replacement part. The day that wheel fell off I had a mid-term in one of my classes and when my professor saw me she thought I was insane for rolling the 7 blocks to make it anyway. And trust me, if THAT professor was calling me insane.. then I guess sometimes my judgment can be really questionable.

3. Classy goes messy. It was a school tradition that the President served students breakfast. There were lots of administrators, deans, professors and tables stocked with food that had been nicely decorated. A corner of the tablecloth to one of the buffet tables got caught in my tire and BAM... onto the floor go an entire plate of cannoli's, pancakes, fruit.. I looked around and all I could say was "I guess the 5 second rule doesn't count?"

4. Painfully speechless. The editors of the high school newspaper were called in for a meeting that morning and there were bagels for us. It was an important meeting because we were having personnel issues and as I went to bite into my bagel - for whatever reason - the back of my jaw snaps. I sat for the duration of that incredibly tense meeting with my mouth shut, an un-chewed bite of bagel in my mouth, and just nodded and said "mmhmm" the whole time. Later on after school I went to the ortho and found out my jaw was broken - no fun at all!

5. The Claustrophobic Aide. In 9th grade my aide was claustrophobic. The reason why the school had hired her to begin with? So that she would go in the elevators with me as a preventative measure in case I got stuck or the elevator broke. Did I mention? She was claustrophobic... which means she never went in the elevators with me. Instead she would meet me at the next floor in front of the elevator doors and listen to make sure it was still running. Now that I think about it.. this incident deserves its own blog entry. It's an epic tale of youthful rebellion: The Time Sandy Staged a Coup & Got Rid of the Aide ;-)

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