Showing posts with label wheelchair dependence. Show all posts

Top 5 Pet Peeves: Non-Wheelchair Users' Behavior

1. It's an Automatic Door. By Definition You Don't Need to Hold it Open For Me. 

I'm not really sure what else I could say about this but it happens quite often. When you see me entering or exiting the CVS don't be surprised when I give you a dead pan you are a moron look if you're holding open the automatic door. Not only are you being unhelpful but you are also, most likely, standing in my way by holding open the automatic door. I'm not ungrateful, I just think that you should give technology a little bit more credit.

2. Glancing Over at Me Multiple Times But Pretending You Are Not Looking.
I have always believed in owning up to your actions. So if you're going to stare, then stare. Let's not play the stare-tag game whereby you look at me and then when I look at you you quickly turn your head away; and then when I think I've put a stop to it you turn your head back, but my peripheral vision is uncanny in both its width and intuition - I know that you're staring again so I look back at you. You quickly realize you've been caught red handed and turn away again... and well, do you see how boring this gets? Next time, just ask for my number or be ready for me to ask for yours.

3. You Don't Need to Ask My Permission to Take the Elevator.
Until I get a private elevator in my own home this is a public elevator. If I am already in it and the doors are about to close any second, you don't need to ask whether or not you can join me. I'm not going to say "no" because I was raised better than that. And I'm not going to pick-a-fight about how you could just take the stairs because it's probably faster for you. And nor will I make you uncomfortable by silently judging you during the 45 second ride. It's an elevator, we've all got places to go and things to do, so let's just move along with our day. 

4. Please Don't Scream In Shock or Horror As You are Opening the Bathroom Door.
I know, I am a small person on wheels. On very fast wheels. But I've been told that I'm a friendly person, I'm fairly open, and enjoy meeting other people. So there's no reason to scream at me if I am either exiting or entering the public bathroom. This usually happens right when the door cracks open enough, you are still in your own world looking straight above my head, and you won't notice me until you realize you are about to walk into or over me, then you look down and do a little "aaahh!" And for the sake of our bladders, let's not risk shocking each other into accidents in our pants okay? 

5. You Don't Need Access to that Curb Cut But I Definitely Do. 
It really ticks me off when there is a crosswalk and as we are crossing you will head towards the curb cut at the exact same second I am heading up the mini-ramp. My irritation is only heightened, and your (hopefully) self-realized idiocy is emphasized because all around us there are at least 20 other people who have figured out that they can walk down or up the sidewalk that is merely inches away. Most of the time I have realized this is because you are staring at me and you will (maybe without realizing) head towards my direction. I wish that in the seconds you are looking at me you would realize "oh that's a person in a wheelchair, oh she needs the curb cut and I don't." Next time this happens, do tell me what is going through your head instead. 

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Wrap-Up

I don't know about you but this week just seemed to drag on forever for me! In between work and getting ready for the upcoming fall I managed to squeeze in a Red Sox game and saw the movie Friends with Benefits; then my younger bro turned 18 and I attended an event that honored the 21st Anniversary of the ADA.

  • Tuesday: In this entry I wrote about my most traumatic fracture to date. After a fall from my manual wheelchair: two fractured femurs, a pool of blood, and an ambulance ride later I learned what to do in the event of a '911 fracture' incident. 
  • Fracture Free Friday: What's the point of having a rod surgery if you can't walk 'normally' afterwards? I talk about some of the pros & cons of rod operations in today's Fracture Free Friday post over at Unbreakable Journey! 

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How-to: Sit for endless hours

By the time Thursday morning at 6AM rolls around my body is audibly grumpy with me. If I could imagine it speaking it would probably say something like:

You better not fold me back into that wheelchair. Do you know how many 90 degree angles are involved in sitting in a wheelchair? TRY COUNTING THEM SOMETIME! And while you're at it, try counting HOW MANY HOURS you make me sit like that for! You are now in your 20's and you've been doing this everyday for the past two decades - you do that math!

...Sorry body, but there isn't really a choice for you.

Aaron Fotheringham takes wheelchair sitting to the xtreme!


Sometimes I get dull aches and pains in my hip and in the upper part of my femurs when I have been sitting for too long. At worst I am actually afraid that I will fracture something if I suddenly move out of position! My bones will give me a sharp jolt, like a reminder hey, we're quite comfortable like this. Don't you go moving around now! It wasn't until very recently that I had the nerve to twist my upper torso around in my seat; the first time I did that I felt something pop in my back I was horrified and filled with dread. What just happened? Did I just break my back? I've never popped my back before! After consulting with a friend about what "cracking your back" feels like, I was relieved to know that the little 'pop' I had felt was... normal. 

"What? You're tired? How are you tired? You don't even need to do anything, you just SIT all day!" How many of my readers have been asked this question by baffled friends and family? Usually I am far too exhausted and don't even know WHERE to begin with my response. How would non-wheelchair users ever understand what it takes to constantly be sitting upright, knees and hips bent? Would they understand that budging even a little out of our seats could end up in a fall or worse an injury? And even though most wheelchairs are fitted to ensure growth space - that wiggle room doesn't provide much liberty to unfold from an 8-hour workday of being rigid. 

Needless to say, after this work week is done I am looking forward to collapsing into bed as I do at the end of every week. I love those first few minutes when I stretch. It's relieving, re-energizing, and in an odd way makes me feel happier. When I was younger I used to pretend that the sensation I was feeling whenever I stretched was me actually.. "growing" every time I did it. 

Stretching in a wheelchair:
  • For younger kids, if possible, the school day should be adapted so that there is time spent out of the wheelchair. Whether it's sitting on the floor with the class, getting out of the chair during recess, or participating in gym class, or having physical therapy sessions at school it's important for younger kids to maintain as much mobility as possible
  • Many wheelchairs have the ability to recline, tilt, even stand-up! If it's appropriate see if that's not possible for you. Also, if you have these capabilities - make sure that they are actually used from time to time, otherwise gears and switches can get stuck from years of not being used. I used to only use my wheelchairs recline ability when I had a long leg cast, but I've come to learn that it's handy to use even when I don't have a fracture
  • Footrests that extend or swing away help "free up" space to move around, even if it's just to swing your legs back and forth
  • The internet has loads of upper body stretches and exercises that you can adapt to your own physical abilities or work with a physical therapist to come up with others
  • My jay J2 gel seat cushions have been a LIFE SAVER  
  • Usually if I am at my desk and my wheelchair securely locked, I take off my seat belt. I know that this doesn't seem like much, but being able to move forward and away from the back of my wheelchair seat has given me a couple of extra inches of free space to move around

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